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Featuring contributions from the US, Europe and the UK, this edited collection addresses issues relating to research ethics and integrity when undertaking social research with older people and service users.
Setting out practical insights and guidance, as well as addressing theoretical and philosophical aspects, this volume includes contributions from ‘researchers’, ’the researched’ and ‘those in between’ on topics including dementia, family carers, safeguarding and mental health with the common goal of producing high quality 'user' relevant research.
Equipping readers with an understanding of how to move forward not only as researchers but also as consumers of research and citizens, Ethics and Integrity in Research with Older People and Service Users is a timely and insightful contribution to the Advances in Research Ethics and Integrity series.
Roger O’Sullivan has collated this valuable resource for anyone with an interest in the intersection of research ethics and integrity as applied to research with older people and service users.
Foreword; Robin Webster
Section 1. Views of the researchers
Chapter 1. Theory and Practice of User Involved Research; Erin McGaffigan, Dani Skenadore Foster, Sophia Webber, and Missy Destrampe
Chapter 2. Navigating Person-Centred Ethics: A Sensory Ethnographic Study Involving Older People Living With Dementia And Family Carers; Rahena Mossabir
Chapter 3. Incorporating Older Adult Voice into Meaningful Research – ”It’s about time”; Amy R. Eisenstein, Rebecca L. H. Berman, and Katherine M. Abbott
Chapter 4. Family Conflict in Dementia Caregiving: Maintaining Research Ethics and Integrity; Kelly Norwood and Mary Webster
Chapter 5 - Ethical Issues in Research with Vulnerable People: A Case Study; Aideen Sheehan and Roger O’Sullivan
Section 2. Views of the researched
Chapter 6. Involving lay Members of the Public in Research - Reflections and Insights; Eiddwen Thomas and Shanaz Dorkenoo
Chapter 7. Ethics, Integrity and Coproduction in Mental Health Research; Peter Bates and Andy Willis
Section 3. Views from those in between
Chapter 8. Research with Older Adults in American Indian Communities – Understanding Knowledge, Power, and Practice; Lyn M. Holley and Azusa Mokuta
Chapter 9. Engaged Research as Team Research – Reflections from the “researcher” and the “researched”; Carol Reynolds Geary and Jeffrey Ordway
Chapter 10. Trying the Patience of Patients: A Personal Reflection; Ron Iphofen