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This co-authored text critically explores the key findings of the Living Life to the Fullest project – a project that has explored the lives, thoughts, hopes and aspirations of disabled young people living with life-limiting and life-threatening conditions. Written by disabled young people and academic researchers, the book articulates ethical co-production in social research.
The prolific contemporary political and theoretical debates about life, death and the human in an age of global precarity and austerity are explored in this book. Chapters draw upon key themes and co-researchers’ priorities for writing about their lives: for example, the politics and potentials of co-production as a research method/ology; animal and human relationships; aging, time; sexuality and body image; politics, activism and disability arts and culture; and fragility, and death and dying.
Kirsty Liddiard is a Senior Research Fellow in the School of Education and co-director of iHuman at the University of Sheffield.
Sally Whitney-Mitchell is an academic researcher with a specialist interest in the lives of disabled young people.
Katy Evans, a Disability Studies graduate, shares her experiences as a young disabled person.
Lucy Watts MBE is an accomplished patient leader and communicator who is passionate about making a difference.
Ruth Spurr lives with multiple complex conditions which cause life threatening complications. She raises awareness through public communications.
Emma Vogelmann is a law graduate and works at Muscular Dystrophy UK.
Katherine Runswick-Cole is Professor of Education and Director of Research in The School of Education at the University of Sheffield.
Dan Goodley is a Professor of Disability Studies and Education in the School of Education and co-director of iHuman at the University of Sheffield.
Chapter 1. Living Life to the Fullest: Our Project
Chapter 2. Theorising disability: Towards a DisHuman perspective
Chapter 3. Co-production, participatory and emancipatory disability research
Chapter 4. Posthuman Connections: Rethinking animal-human relationships
Chapter 5. Disability & Faith
Chapter 6. Rethinking sexuality, our intimate selves and our relationships with others
Chapter 7. Labour in the lives of disabled young people
Chapter 8. Making Meaningful Impact in and with schools
Chapter 9. Desiring Life and Living with Death