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The field of palliative care promises support for a dying person’s physical, psychological, social, and spiritual needs, as well as the needs of family and community. Has this powerful vision been achieved? This state-of-the-field book argues that palliative care has drifted away from its transformative goals—and shows what to do about it.
Bringing together leading international scholars and practitioners, Well-Being at the End of Life demonstrates how contemporary palliative care has slowly but surely strayed from its original values and practices. The provision of palliative care now reflects institutional, medicalized, and health-service priorities. Increasingly, it has become solely clinical, confined and constrained by clinical service considerations and limitations. Those at the end of life are all too often viewed as patients to be treated instead of people with whom care providers must create collaboration, participation, and partnerships.
Contributors call for a paradigm shift in the values and priorities of palliative care to emphasize the importance of community to personal well-being. Drawing on the concept of health promotion, they advance a shared vision that merges the principles of public health with those of palliative care. Reimagining the field to foreground compassion and interdependence, Well-Being at the End of Life offers a new approach that puts community and professional partnerships at the heart of its practice.
— Ellen L. Idler, editor of Religion as a Social Determinant of Public Health
Julian Abel is a palliative care physician and visiting professor at Northumbria University.
Allan Kellehear is professor of end-of-life care at Northumbria University.
Abel and Kellehear are cofounders of Compassionate Communities UK and coeditors of the Oxford Textbook of Public Health Palliative Care (2022).
Foreword, by Stephen R. Connor, Executive Director, Worldwide Hospice Palliative Care Alliance
Preface, by Julian Abel and Allan Kellehear
1. Reimagination and Reform: The Case for Change in Palliative Care, by Julian Abel and Allan Kellehear
2. Healthcare Reimagined, by Julian Abel, Allan Kellehear, Julianne Holt-Lunstad, Nicole Pitcher, Steven W. Cole, and Dacher Keltner
3. Palliative Care Reimagined, by Julian Abel, Allan Kellehear, and Mary Lou Kelley
4. Palliative Care: The New Essentials, by Julian Abel, Allan Kellehear, and Aliki Karapliagou
5. Palliative Curriculum Reimagined, by Julian Abel and Allan Kellehear
6. Future Care Planning Reimagined, by Julian Abel, Allan Kellehear, Mark Taubert, and Helen Kingston
7. Palliative Care Access Reimagined, by Julian Abel, Allan Kellehear, Jason Mills, Manjula Patel, and Vishanthie Sewpaul
8. Bereavement Care Reimagined, by Julian Abel, Allan Kellehear, and Samar Aoun
9. Palliative Care Research Reimagined, by Julian Abel, Allan Kellehear, Matilda Garrido, Emma Hodges, Joseph Sawyer, and Chris Peterson
10. Dying and Death Reimagined, by Julian Abel and Allan Kellehear
11. Public Health Reimagined, by Julian Abel and Allan Kellehear
12. Redefining Palliative Care for the Future, by Julian Abel and Allan Kellehear
Appendix:The Compassionate City Charter
Contributors
Index